Child Help SBH works to improve the lives of people with spina bifida and hydrocephalus through healthcare, rehabilitation, prevention, education, community support and empowerment. We work with families, healthcare providers and partners across Malawi to help people with SBH live healthier, more independent and fulfilling lives.
Child Help SBH helps people with spina bifida and hydrocephalus access essential healthcare, treatment and follow-up support, working alongside hospitals and healthcare providers across Malawi.
Access to specialist medical care
Supply of surgical materials and support
Provision of hydrocephalus shunts
Hospital referrals and coordination
Follow-up care
We provide rehabilitation and incontinence management support that helps people with SBH manage their health, improve independence and participate more confidently at home, school and in their communities.
Incontinence management
Clean Intermittent Catheterization (CIC)
Bowel Wash Out (BWO)
Incontinence training for caregivers
Provision of assistive equipment and materials
Follow-up and ongoing support
We strengthen the knowledge and capacity of healthcare workers, promote awareness and advocacy, and support people with SBH to become more informed, independent and empowered.
Healthcare worker training
Patient and care giver counseling
Capacity building for SBH families and groups
Community advocacy and peer support
We promote awareness, prevention and early intervention to reduce the risk of neural tube defects and help people with SBH receive appropriate support as early as possible.
Folic acid distribution
Maternal education
Early referral and intervention
Community awareness
We support people with SBH and their families to access education, essential assistance and opportunities that promote inclusion, participation and dignity within their communities.
Peer-to-peer counselling
School visit and awareness
Community awareness and inclusion
Provision of chairs, buckets and other essential items
Housing support where needed
